Awareness, ME/CFS, Personal

ME/CFS Protest of Dr. Per Fink

Thanks to Jennie Spotila, who writes at Occupy M.E., I recently became aware of something important to the community of ME/CFS patients and researchers. A doctor named Per Fink is slated to give a presentation at Columbia University about ME/CFS and fibromyalgia. Why is that bad? To quote from Jennie’s post:

Fink is well-known to the ME community because of his involvement in the case of Karina Hansen. In 2013, Hansen was 24 years old when she was forcibly removed from her home and involuntarily committed to Hammel Neurocenter as a psychiatric patient, despite her ME diagnosis. Fink was one of two doctors overseeing her “treatment” at the institution, and permitted almost no family contact for more than one year. After years-long legal battles, Hansen was allowed to return home in 2017 2016 (as documented in Unrest), and her state guardianship was only terminated this week. Given the deterioration in Hansen’s condition while under Fink’s care, one has to wonder how his other “bodily distress syndrome” patients fare.

I am equal parts saddened, disgusted, and enraged. And there’s some fear in there as well. I don’t know what people like him get out of spreading misinformation like this. Does it stroke his ego? Does he just . . . ignore the evidence that tells him he is wrong? I just don’t know. I do know that this is very wrong. He should not be given a platform at such a high profile university to spread harmful misinformation which contradicts scientific study and hinders progress toward understanding and treatment of this illness. If you haven’t already clicked the link, please read Jennie Spotila’s post, which has links to actions you can take.

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